Just say NO to Ketons

The dreaded Ketons appeard in my DD. She had a miserable cold and then BOOM Ketons. Every other day the nurse from school called "your daughter is in here magic number of 385 with moderate Ketons". Ok I leave work to pick her up. We get rid of the ketons, BG back to normal. So after a week of every other day dealing with Ketons she gets them AGAIN. Even set a Temporary basal rate of first 20% then all the way to 40% on her. Her numbers have been 200 and above with moderate ketons. Thats going to make a great A1C for our next visit isn't it.

FINALLY the Ketons are gone her BG is normal and under control and what do you think happens?? Should you ask??? A damn growth spurt. What does that result in LOWS.. 65, 37, 75. What in the world NOW..

If there is anything to living the life with Diabetes is it will KEEP you on your toes at all times. Once you think you have it under control, BAM it stirs things up. The low and High Fairy come to bite you in the ass again.

The dreaded A1C

Since going onto the pump I do have to say sometimes it takes time to work all the insuling to carbs and the basal rates. ALOT of tweaking sometimes. Maybe just with us.. 3 months ago our A1C was 8.5 <--- Not where I want it to be.

Well since tweaking the pump and checking like crazy and have such GREAT numbers these past 3 months. Oh yea, Im like this A1C will be in the 7's.. WOO HOO baby. Brittney waking up with great numbers in the morning, great numbers at lunch and dinner. Well well well there must be something wrong with the lab results because our A1C this time is 8.4 WHAT the Hell?? How is this possible I ask the Endo. She is like OH NO this mother is not happy.. She did feel bad for me, but YES I do feel like its a report card on myself since I am my daughters care giver. I felt like a horrible mother.

Well I seem to think at the rate we are going we will be in the 7's in about 1 1/2 years..lol..

Until next time.. next update on A1C November 7th..

Untethered

Letting up before the untethered comes in, we went a friends party at their pavillion near the water. What a beautiful day, the kids brought their bathing suits and the moonbounce was there. Britt decides she is going to swim in the water which is salt water, that means Crabs and Jellyfish. Ewww I will not get into that water, No that is why I didn't bring my bathing suit. I don't like water that I can not see the dam bottom.

So she jumps in is having the time of her life with all the friends children and what happens. Her damn site for her pump falls off. No big deal, I say we can use the numbing cream when you are done and put another site on. Also prepaired for this to happen we load up all the diabetic supplies which I believe you do need your own 12 pack holder of beer cooler for these supplies. Of course we have needles tons of them, novolog, glucagon, iv3000, numbing cream and Orange juice. Where does the beer fit in this cooler It doesn't you have to bring another cooler for the rest of the other stuff..LOL Getting back to the story, she is done swimming and she is in the bathroom balling her little eyes out saying "I HATE DIABETES". Of course I am a mess and feel oh so sorry for her that she has to go through this every dam day of her life till a friggin cure is found. She says none of my friends have this and I am hooked up to my pump every day of my life I want to be a kid again. This broke my heart. I had to let out a cry with her. Okay I say, I understand every child needs a break. As we walk back up to the pavillion there is the husband god love him, with numbing cream in one hand and IV3000 in the other saying "Britt its time to put the cream on if you are done swimming". I look at him like he has horns and 5 eyeballs growing on his head and said "just put it away". I wanted her to calm down, and he looked at me like I had horns coming out of my head like WTF is going on.. So needless to say we do a site change in the front seat of the Toyota 4 runner which isn't the easiest thing to do especially in the bum of her. She didn't even let the numbing cream soak into her she was like "Just get it over with". I call the Endo on Monday, get the lantus do the lantus shot 3.5 units in the morning and 3 units in the evening, Numbers are insane 300's but it gave Britt a break from the pump. she got a full 24 hours not being hooked up to her buddy. She finally realizes that this untethered stuff is for the birds and now we are back to full Pumping.. Yeah Baby.. Since we had great numbers these past 3 months with pumping and changing basals and I:C ratio's I thought pumping was going good, number's wise. I do believe the untethered would have been a good thing if she would have given it time for the lantus to get into her system. But she knows its always there for her to go back to if she ever needs that "Diabetic Break"!

Trail Net Results

Okay as some of you know we went to Trail Net in May to get my son Nick tested for the antibodies of Diabetes. So while we are there the husband and I decide what the heck we will get it done. Great lady at trial net is Lee. She comes out and ask's Nick if he wants some Numbing cream. He knows the word numbing cream from when we put that on our Daughter during site changes for her insulin pump. "Nick states, NUMBING CREAM.. What, Im not no diabetic" This coming from a 5 year old.. I laughed so hard.. So the three of us are done at Trial net and the waiting game begins. Lee states 6-8 weeks for the result.. WHY that long...lol..So on the 4th week I went home from lunch and in the mail box was two letters from Trial Net. One addressed to Nickolas and one to Fred.. WTF where is mine?? I pick up the phone and call the hubby at work going, Congrats both you and Nick are negative for the antibodies.. He goes what about you, WHAT mine wasn't even in there.. Love of god I say.. So of course I return to work and send Lee a yippeee Im so happy Nick and Fred are negative now what about me.
So of course she calls me that night saying Im so sorry the letters weren't suppose to be sent without all your results.. OK get to the point now.. Im positive for what?? GAD65 is high.. And for me to come back and lets redo the GAD65 test... Im like REDO I just waited 4 weeks for my results.. Ok, lets redo it to make sure you people didn't mess up.. lol.. So another 4 weeks later my 2nd GAD65 comes back high....... So off to Phase II I go.. And ya know I hate given blood.. I just really hate it.. So Phase II I have to do the OGTT which I hate that nasty orange drink you have to drink. I hated it when I was pregnant.. I could gag on that crap.. I dont like anything orange. I suppose if it came in Bud Light Beer flavored or ya know something with Malibu Rum in it It would taste great. Until Next time..

July 10, 2008 A little About Me & My Family

My first Blog. Wow I finally figured out how to set one up. Hope it turns out ok as I have typed this 3 times to view it and it has disappeared..LOL.

I have been reading alot of the parent blogs on the CWD boards. What a great group of mothers and fathers we have on those boards. I love reading about their lives and the lives of their children so I figured Why shouldn't I give it a try.... Some of them can really put a smile on your face when you are having a rotten day..

My life as a mother of Type 1. My daughter Brittney was diagnosed with Type 1 diabetes 1-19-07. Her brother at the time had no idea what happened to his sissy but he had the time of his life with friends and family. What 4 year old at the time wouldn't love Chuck E Cheese. What We spent a week at the hospital and that was the longest time being away from my son. I also didn't want to leave my daughters side because I was afraid of the unknown. I didn't know if she was going to die and I didn't know if I emotionally was going to be ok. I had many friends and family who I talked to every day who are and were my rock. My husband Who stood by me in the time when I needed him the most, would go get something to eat and ask me to come along however I couldn't eat a thing. I was sick to my stomach..I just wanted to sit by her side. I just wanted my little girl to be OK. OK is what she is. She is one amazing girl who takes her shots regularly before she was put onto the insulin pump. We have had some horrible times dealing with diabetes but ya know what we get through them.

Now we have been with the diabetes for 1 1/2 years now and it seems like we have always been dealing with it. Some days are harder than others but we manage to get through it. Remember that the BG levels are a number and I can't get caught up in one number. You have to look at the whole Picture.

Nickolas aka "Bubby" just graduated Pre-K and he will be going into the Big Kindergarten in August. He is so excited to be going to the big school like his sissy. They have spent the entire summer together at the school camp which he is having the time of his life there. One friend says I didn't know Bubby loves puzzels so much. He does them ALL day long.. lol.. Which he makes his friend do them with him.. Awww his friend is like his big brother.